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inconvenient truths

Last week we ran press conferences on climate change and CFS/ME. The subjects are complex and contentious, and there is always the potential for jarring or simplistic headlines and strong reactions from the vocal critics of research in these fields. But it was the criticism from within the scientific community that we had not anticipated. read more

expert reaction to controversial treatment for CFS/ME

In a new study, and despite strong initial scepticism, researchers publishing in the Journal of Archives of Disease in Childhood report that a training course alongside specialist care has proved to be an effective treatment for chronic fatigue syndrome (CFS)/myalgic encdephalomyelitis (ME). read more

Testing a ‘controversial’ treatment for CFS/ME in children

In England up to two in 100 children have Chronic Fatigue Syndrome (CFS/ME), the illness means they are unable to go to school or do other activities for more than three months. In fact 1% of secondary school children miss a day a week or more because of it. Unfortunately controversy rages around the illness and the treatment. Most children will recover if they receive specialist treatment; however, there is very limited specialist care in the UK and approximately 90% of children live too far away to receive the treatment they need. Cognitive Behavioural Therapy (CBT) is known to be effective for children and a very successful trial in the Netherlands showed it can be delivered over the internet, meaning children can be helped wherever they live. However, we do not know if the results can be replicated in the UK so researchers, amidst rising tension from some people who do not support treatments such as CBT or Graded Exercise Therapy, are now starting a large clinical trial to test whether this treatment would work in the UK and should be available on the NHS. read more

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